Job summary
The Royal Free Hospital is a national specialist centre designated by NHS England (NHSE) for the diagnosis and management of patients with lysosomal storage disorders. These are a group of very rare inherited metabolic disorders causing specific enzyme deficiencies which result in widespread accumulation of various substrates in numerous organ systems and tissues.
The Unit has a need to maintain the existing clinical database and implement new disease specific databases for monitoring high cost therapies in particular. The disease specific databases contribute to collecting information on the natural history and pathophysiology of these disorders, treatment outcomes, quality of life and goals of therapy achievements. The database aids the routine management of the patients.
This post will also assist RFH commissioning team, clinicians and nurse specialist with data monitoring and reporting to NHSE.
Main duties of the job
1. Maintain existing LSDU clinical databases, with specific expertise and knowledge of Microsoft Access, Microsoft SQL Server, using relational databases (and implementing new databases); routine and timely reporting to external stakeholders such as NHSE, and generating ad hoc reports as required.
2. Lead in the capture and statical analysis of clinical data in order to provide timely and accurate data to clinicians and NHSE clinical outcomes reporting.
3. Liaise with RFH LSD commissioning team for timely LSD data reporting
4. Liaise with RFH LSD pharmacy team for timely LSD data reporting
5. Expert knowledge on using Trust systems for information management.
6. Support the LSD clinical team with EPR/Cerner and clinical pathways development
Person Specification
Royal Free shared commitments
Essential
- Demonstrable ability to meet the Trust shared commitments.
Experience in database administration and management including back up procedures and user support
Essential
- 1 year Experience in database administration and management including back up procedures and user support
- Experience of working with clinical data and reporting to national organisations (e.g. UK Renal Registry, Diabetes UK, NHS England)
- Experience designing and maintaining databases (Microsoft Access, SQL is particularly useful)
- Track record of successfully working in a team
Desirable
- Experience of developing and delivering training
- Experience of project management
Skills and aptitudes
Essential
- Excellent understanding of operating systems
- Acquired specialist expertise in designing clinical databases using access or SQL and management
- Fault fixing/troubleshooting skills
Personal qualities and attributes
Essential
- Excellent communication, negotiation, influencing and diplomatic skills both orally and in writing
- Self-starter, motivated, able to work from own initiative and with strong attention to detail and a methodical approach to their work
- Decision making and problem-solving skills
Education and professional qualifications
Essential
- Educated to Degree level
- IT or system management qualification or relevant experience
- Evidence of continuing personal development
Disclosure and Barring Service Check
This post is subject to the Rehabilitation of Offenders Act (Exceptions Order) 1975 and as such it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service (formerly known as CRB) to check for any previous criminal convictions.
Applications from job seekers who require current Skilled worker sponsorship to work in the UK are welcome and will be considered alongside all other applications. For further information visit the UK Visas and Immigration website (Opens in a new tab).
From 6 April 2017, skilled worker applicants, applying for entry clearance into the UK, have had to present a criminal record certificate from each country they have resided continuously or cumulatively for 12 months or more in the past 10 years. Adult dependants (over 18 years old) are also subject to this requirement. Guidance can be found here Criminal records checks for overseas applicants (Opens in a new tab).
Closing Date: 31 August 2026
